For individuals living with Ehlers-Danlos Syndrome and related hypermobility spectrum disorders, the journey through surgery can be fraught with unique challenges. Many report adverse or suboptimal experiences during the perioperative period due to the complex interplay of tissue fragility, autonomic dysfunction, and potential mast cell reactions that are common in this population. Standard surgical and anesthetic protocols may not be sufficient, often leading to complications with wound healing, pain management, and recovery.
To better support both patients and their clinical teams, the "Trifecta Pre Operative" document was developed as a resource. It consolidates critical information and best-practice recommendations for managing patients with the frequently co-occurring conditions of HSD/hEDS, Mast Cell Activation Syndrome, and Dysautonomia/POTS. The guide aims to foster a proactive, interdisciplinary approach, equipping medical professionals with the necessary knowledge to anticipate risks, tailor their care plan, and ultimately improve the safety and success of surgical outcomes for these complex patients
Authors Dr Jason Lam & Sharon Hennessey Founder and Principal Physiotherapist of Not Just Bendy Hypermobility Services.